My name is Misty and I have Chiari 1 Malformation. I also have 2 wonderful boys and have been married to my high school sweetheart for 9 years. I am a sports junkie and huge University of Utah supporter.  This blog is about what it is like to have Chiari and be a Mom and a wife and just a person. It is a terrible illness that has left me disabled and I am still trying to cope with the diagnosis and everything that goes with it. I hope you learn something, about me and what its like for us Chiarians. Feel free to comment, ask questions or leave any type of feedback.


1 thought on “Welcome”

  1. Hi misty, not sure if you’ll get this, but I just moved to utah and diagnosed with chiari, cervical instability, retroflexed dens/odontoid and possibly eds! Oh my! Ughh!! I saw your blog, hope we can connect- I’d love to form a support group! I wonder how your doing? Did you have surgery with dr. Oro ? So many questions I have! 🙂 I’ve had the awful experiences you’ve had with neurologists, bad medications, and the lumbar spinal tap from hell! :/ you can contact me via email or my cell, 3852902375. Thanks misty! Stacey

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